Tuesday, January 4, 2011

Decisions Decisions

This is kinda long so read if you want...

My baby boy has been through alot over the past few months and we are still battling to figure out what we are supposed to do and today was a day that I was fed up with all of it. He has had a cyst on his bottom since September and our Dr. drained it and said it should go away. Well it didnt and it has been coming back ever since. He said there was nothing else he could do so he recommended us to a peds surgery group back in November. We went and she was not very nice and just gave us some antibiotics, which we had already been on but we did it anyway. She said come back in a month. We did and of course when we did it was not at a head so she said it was just dead tissue and it will go away. Just come back in March?!?! So I left disappointed but what else could we do? It came back again then went away but this past weekend it was bleeding and then it came to the biggest head it ever has on Monday. He was in so much pain and was up in the middle of the night screaming, which something is very wrong for that to happen. So this morning I was done, I called the surgeons office and explained to them what happened and said I really wanted him seen soon so they could see how it looked. Well it popped when I was waiting on a call back and when she did call she said it would be 3 weeks till they could work him in. I then began to cry and tell her that I have to get him in very soon. She told me she would talk to the doctor and call me back. In the meantime I called our Dr. to see if we could just go see him. Well since we have now been to a surgeon our own doctor cant do anything about it. So they said to see if another dr. could see him. So I call back and the little lady that I had talked with earlier told me they were all booked for like a month. So I say ok, she says she will call back later. Bye. She finally calls about 12:30 this afternoon and asks me how far away we are and I told her about an hour, she said well get things ready in case we can work you in this afternoon. How am I to get things ready when I have to go get Coop from school at 2:45??? Neways, Colton, Caden, and I were packed ready to go and we would decide about Coop later, days like today would be awesome if we had 2 cars...neways. I get a call at 1:45 saying there is another dr. that can see him, go there asap. I call Jon to see if he can go with me b/c of the day I was having I didnt want to go alone to hear all our options. I went to the church and picked him up, my mom went and got Coop from school and just took him back to work with her. We made it and met a great dr, he took his time with us and was very kind. He said his formula could be causing it to reoccur so try soy formula. So we will start that. He could have surgery then a few days later another one could pop up so it possibly could come back. Then the more surgerys you have he could loose control of his bowels. Not gonna put him through that. He also said that once he is eating regular food and off formula it could go away. So Jon and I are praying that the formula change will help him and that it just goes away. Please pray for him. It doesnt bother him unless it swells up then he is hurting alot! We have a big decision to make before we go back on the 24th. Sorry its so long but I wanted to document all that we have been through. We appreciate all the prayers we can get. I am just so thankful to God for opening the door for us to get in today!

4 comments:

Ben and Audrey said...

bless your heart. that sounds terrible. i would be the same way, i promise. i would be begging someone to get me in & i would be calling every doctor in the tri-state area, ha!

i'll be praying that the formula helps & that it doesn't come back. keep posting. love you, friend!

Shannon said...

Girl, That is terrible. I am praying for ya'll. Please let me know if there is anything I can do for you guys.

Also, the surgeon we had for Jackson was WONDERFUL. His name was Dr. Blakely and he is at Lebonheur East (not sure what group that is). If things don't work out with this one.

Unknown said...

Jess i am home during the day and i have a car. I am close to brighton elementary, only 10min. So if you ever need I can pick Coop up. And he can stay with me or I can bring him to you or whereever. If you want, put me on your list. I really do not mind. I keep a 4 yr old boy during the day so if he came here there would be someone to play with and I have a 5yr old girl after school.Not to mention Spencer. And Tricia brings her boys over all the time. My number is 901-573-6716 heather

Pam said...

I had no idea you all were having such problems. Sounds exactly like me. You get to a point in the midst of your difficulties you just want something done, especially if it concerns your babies.
I will definitely keep you all in my prayers that the formula works first and that God's divine healing be felt on his poor precious body! God is in control...no matter that we can't see the good in the midst of our storms. Love you and will be praying for you.